We knew this day would come, but at the same time no matter how much I’ve tried to prepare it doesn’t help. On the mildly funny side this morning I launched myself into the breakfast room wall and cut my head Laura Esserman ended up sewing me up! Rugo said the MRI showed that the cancer lesions in the cerebellum in particular exploded into the 100s
So it is hard for them to put a date aroundit but it could be 1-3 months. My goal is Halloween then thanksgiving then Christmas then little dix bay reopen . Nothing makes leaving kids and Creighton and family and dear friends. Nothing. So one day at a time from now on.
I was fine when I got to Martha’s Vineyard, but quickly noticed weakness in my thighs and increasing neuropathy or numbness in hands go fingers and feet .ugh!!! stumble a lot now and am very uncoordinated. So finally the cerebellum explained that rapid decline. I’m going to fight with drugs until compassionate care makes more sense and who knows, maybe that will extend my time. The kids were amazing although we all cried. Sleeping well and good energy . As usual we are so thankful for love and support. PleAse be patient with us as we navigate insane time. Much love ❤️ no matter what it has been one hell of a life and I’m proud of the legacy I leave and theSe fabulous kids..