My Mom sent a wonderful note this week saying that while they are rather quiet people they have loved seeing life brought a child who lives in technicolor. It made me laugh and cry as it was so on. When I sort out my tech I wil be able to share more of he magnificent photos taken by Becca from Rah photography. She is truly gifted.
I am 6 hours into a UCSF day. Great meeting with palliative care who keeps my head and pain on track. Blood draw and two units of blood with lots of waiting but some good girlfriends keeping me company. It looks beautiful outside so I hope to sneak in a short walk when I get out of here. THe bilirubin looks better so cheers to that. I still have crazy shortness of breath from time to time, especially in the morning, but otherwise hanging in there.
Mom and Dad have been amazing with their frequent drives up to the city and dear friend Monica spoiled me by coming up from Carmel to cook a fabulous dinner and to be a fan at rehearsal. My voice held up well, and it was a joy to sing to her! She made a big move from Seattle to Carmel, and it has been fun hearing about life as a 40 something in a beautiful resort community. Besides Big Sur Land Trust she has gotten super involved in the Monterey Museum of Art. Who knew there was such a precious gem with a huge and compelling western art collection as well as history. I look forward to getting back there in a trip down.
I still struggle with overprogramming and not letting myself nap enough, but I’m getting there. I feel like we did meaningful prep on death and hospice and acceptance in the family and that is allowing us to live each day more fully and hope that that in turn buys us many more.
I’m reading Hidden Figures but need to get another dose of Billions soon!
I will continue to say thank you for spoiling me in so many ways for I swear it is magic medicine.
have a fantastic weekend!!! Love to all